Friday, February 24, 2012

Assessment Days

Today was an assessment day for Daniel.  I HATE ASSESSMENT DAYS!!  Hate them!  I beam about my boy all week long, and then feel like I get sucker punched when it’s assessment time.  It is so disheartening to answer “no” to so many “Does/Can your child (fill in the blank)?” questions.

He is 10 months old, and he doesn’t pull himself up to things.  But why doesn’t it count that he is trying harder than I’ve ever seen a baby try?

He is 10 months old, and he doesn’t play social games like peek-a-boo and patty cake.  But why doesn’t it count that he can engage a stranger with just the sight of his big, beautiful, bright blue eyes?

He is 10 months old, and he doesn’t say any approximations of words.  But why doesn’t it count that his smile lights up a room, his giggle is intoxicating, and his lion’s roar brings everyone running?

Daniel sits like a rock star, is commando crawling almost as well as a 19-year-old kid in boot camp, his smiles melt my heart, and he is the most loveable, pleasant baby.  He works harder than any baby I’ve had.  AND…he’s been through more in his short 10 months than many people go through in a lifetime!!  But that’s not on the assessments.  I’m not in denial - I know he’s going to have delays.  But already – at 10 months old – he’s being labeled.  And I hate that.  Why must we use so many labels?  Why do we package up such a complex and unique individual into a one- or two-word statement?  Society-placed limitations is all they are.

Life should be more about celebrating where we’re at right now and how far we’ve come to get here.  It should be about individual strengths and abilities.  It should be about effort and heart, growth and triumph.  I’m so proud proud of my boy, and for how far he has come in his short 10 months.  And there is no assessment on Earth that will ever measure the joy he brings to me every single minute.

Thursday, February 23, 2012

The Days of our Lives

We’ve had a pretty eventful month, considering that it’s tax season and I try reeeallly hard to not do much when it is!  Maybe life is trying to tell me to suck it up and get over it?!?

Daniel had his little surgery last Friday.  Though, when he’s under anesthesia for 90 minutes, it doesn’t feel “little.”  Thankfully everything went well and he is recovering nicely. 

Surgery

There was so much negative pressure behind both of his ear drums (due to the “glue” that was in there), that the first bone in the middle ear was in a horizontal position in both ears.  For those who are not familiar with the workings of the middle ear, the first bone – the Maleus or “hammer” - is supposed to be in a nearly vertical position.  The pressure was sucking that poor little bone – along with the eardrum – way into his middle ear.  The results of the ABR were good.  His auditory nerve is functioning beautifully.  He does have some residual hearing loss, however, and we will need to follow up with the audiologist to get more detail on that.  And is eyes are beautifully non-goopy!  It is so nice to actually see his eyes first thing in the morning!

We had a fun evening with our local Down syndrome group the evening of Daniel’s surgery.  We went bowling – which is always “fun” with small kids who can hardly move the ball but refuse any and all help.  After we had been there for around 30 minutes, the lights turned black and we went Cosmic Bowling.  The kids had a great time with that, and they especially loved my jeans with their white stitching and jewels on the back pockets.

For the most part, the weather has been so springy this winter, which has been wonderful.  The kids have been out to play in our snowless yard several times.  Caleb was brought in, completely against his will, on Friday (man, Friday was an eventful day for us!) because he was eating the dirt.  I asked him why he was eating the dirt, and he whimpered, “Because I was hungry.”  Uh huh.  The twelve dozen snacks plus meals he has in a day just weren’t cuttin’ it for him.

dirty boy 

Grandma L. came to visit for Prsident’s Day.  She gave us a fun, much-needed break from the everyday stuff we always do.  And what’s a visit without trying to get a few pictures of (almost) everyone?!?!  This was probably the best of several.  Can you see all their personalities?

Grandma1

Funny faces!!

Grandma2

Oh, and we can’t forget about the fun day on Tuesday.  I was working on homework with Emily, and Rachel was attempting to use the bathroom when she yelled, “Hey, who turned out the light??”  I immediately accused Caleb (hey, it’s just this kid’s M.O.), and he said, “I didn’t do it!”  Oh.  Turns out the power went out.  No big deal.  We continued working on homework and trying to get things done.  We still had no power at 4:30, so I told the kids if it wasn’t on by 5:00, we’d go get pizza and they’d be coming to Mutual with me.  Jared WAS going to come home early, but no sense in him doing that if there is no power.  So at the appointed time, and still powerless, we headed out for pizza.  As we drove up our street, it became apparent that the other houses all had power.  Odd.  We stopped back after dinner and, of course, the power was still out.  I gathered up what I needed for Mutual (in my mostly dark room) and then decided I’d call the power company.  Their automated system said they were aware of the outage and that crews were there working on it.  They expected it to be back by 8:00 p.m.  We still had time to kill before Mutual, so we went and got ice cream at McDonald’s.  We drove back up our street on the way to Mutual, and I could tell that the power outage was only 3 houses, ours included.  Seriously, of all the times, it has to choose a Tuesday!!

And lastly, the physical therapist told me to get Daniel a pair of lace-up, hard soled shoes.  I wondered if there were going to be any SMALL enough to fit his feet!  These are a size 1, and this picture really does no justice to just how tiny they are!

shoes

Thursday, February 16, 2012

Finally…an update!

I am so behind.  Five kids, tax season, Young Women, and just life in general are kicking my fanny!!  I am stealing a few minutes (not sure from where/who) to get an update posted.  So here goes!

As promised – a video of Daniel’s commando/army crawling.  It’s quite unique because he doesn’t use his right arm as much.  But it gets him where he wants to go!

 

Here are a few fun pictures.  Rachel had a fieldtrip to the fire station last week and got to bring home a couple of hats.  Lots of dress-up fun!

Firemen

2066

We had to do our Valentine celebration on Monday since I had Young Women on Tuesday.  AND, I got to bring the kids – all five of them – with me because we were doing a babysitting service.  (My kids were about 1/3 of all the kids there!)  We didn’t do anything too spectacular on Monday – just homemade pizza for dinner (not even heart-shaped), and a few games with lots of candy for FHE.

Josh had to make a box for his Valentines at school, so we decided a giant Lego would be just about right.  (It might actually kill him to smile!)

Josh

 

This was Rachel’s Valentine that was not meant to be (we were going to stick the sucker in her hand).

Rachel

I sent it to Macey’s to get printed on Monday morning (she needed them for preschool that afternoon).  I don’t know what happened at Macey’s, but she was home from school by the time it got printed!  Good thing I had the tiny amount of sense to pick up a box of Valentine Skittles.

And I am horrible at taking pictures, especially of Emily and Josh since they’re gone all day long.  So I have nothing of Emily.  But, once again, she made the Honor Roll.  And, we got a great call from a teacher letting us know that she is so good at making everyone – especially the resource kids (special ed.) feel important, and what a quiet leader she is.  Proud parent moment, for sure!!

Sunday, February 5, 2012

I’m Lazy

This blog is in need of an update.  But it’s not happening, ‘cause I’m feeling kinda lazy.

Or maybe it’s because I’m feeling a wee bit busy.

We’re trying to get our house ready to put up for sale.

It’s tax season.

Do you want to hear more excuses?  (Probably not…but I’ve definitely got ‘em!)

Daniel has a new trick – army crawling/lunging/forward movement kind of stuff!  So I’ll post a video soon.  If I can get over this lazy curse.